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Petra Aden fra Nasjonalt senter for sjeldne diagnoser- Sunnaas (tidligere TRS-kompetansesenter) vil fortelle om: Basiskunnskap om diagnosen. Hva tilbys av løsninger på urin og avføringsproblematikk i dag? Flere opplever at symptomer på Tethered Cord dukker opp selv om man er operert. Hvordan kan det behandles? Tilbudet fra barnehabiliteringen er i endring, hvordan skal vi forholde […] |
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